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Texas Cancer Genetics Consortium: Education and Outreach Work Group

Funding Source: National Cancer Institute Grant: 1 U24 CA 78142
2000-04

SUMMARY

The Texas Cancer Genetics Consortium (TCGC): Education & Communication Work Group supports development of model communication systems for the activities of the Cancer Genetics Network (Web sites, newsletters, patient education documents, etc.). It serves as a clearinghouse for available and relevant educational media for health care providers, researchers and Cancer Genetics Network participants. The work group identifies educational issues that need evaluation and/or research attention, and collaborates with other working groups and committees to develop independent research projects.

PRINCIPAL INVESTIGATOR

  • Amelie G. Ramirez, DrPH
    IHPR, The University of Texas Health Science Center at San Antonio (at Baylor College of Medicine for this project)

CO-PRINCIPAL INVESTIGATORS

  • Kipling Gallion, MA
    IHPR, The University of Texas Health Science Center at San Antonio (at Baylor College of Medicine for this project)

COLLABORATORS

  • M.D. Anderson Cancer Center
  • The University of Texas Health Science Center at San Antonio
  • Cancer Therapy & Research Center
  • Baylor College of Medicine
  • UT Southwestern Medical Center
  • National Education and Community Work Group: Rocky Mountain Cancer Genetics Coalition
  • Northwest Cancer Genetics Center
  • Mid Atlantic Cancer Genetics Network
  • Carolina-Georgia Cancer Genetics Network Center
  • Texas Cancer Genetics Consortium
  • Georgetown University Medical Center
  • Cancer Genetics Network Center
  • University of Pennsylvania Cancer Genetics Network Center
  • UCI-UCSD Cancer Genetics Network Center

LOCATION/SERVICE AREA

National

CONCLUSIONS

Web sites, symposia, seminars, targeted lectures, and newsletters have been developed to increase awareness and education about cancer genetics issues in an aim to increase education regarding cancer genetic issues among professionals, patients, families, and the general public.

PUBLICATIONS

  • Hughes C, Peterson S, Ramirez AG, Gallion K, McDonald P, Sugg Skinner C, Bowen D. 2004. Minority Recruitment in Hereditary Breast Cancer Research. Cancer Epidemiology, Biomarkers and Prevention, 13(7).